Education, clarity and comfort.
Who says it only has to happen during appointments?

That’s why we’d like to provide you with some useful links to help you on your journey to health. So take a look, write down any questions that arise from your research and we’ll be glad to talk about them with you on our next appointment.

GENERAL MEDICAL INFORMATION

1. Medline Plus.  General medical information on varied topics.  
   www.medlineplus.gov
2. Web MD.  General medical information on varied topics.  
   www.webmd.com
3. Drug Digest.  Information of medications and medication side effects.  www.drugdigest.org
4. The Cochrane Collaboration. Provides unbiased scientific reviews of varied medical topics. www.cochrane.org
5. PubMed.  Original medical research and review articles.  Written for physicians and other professionals but available to the public.  
   www.pubmed.com
6. Quackwatch.  Non-profit company that exposes health related frauds and myths.  www.quackwatch.com

CLINICAL TRIALS

1. Clinical Trials.  Provides information on clinical trials for many different illnesses  www.clinicaltrials.gov
2. National Cancer Institute.  Listing of cancer clinical research trials.  www.cancer.gov/clinical_trials

PATIENT ADVOCACY

1. DiagKnowsis.  Patient advocate website which provides resources for medical decision making.   www.DiagKnowsis.org
2. Honest Medicine.  General patient advocacy website.  
   www.honestmedicine.com
3. Wrong Diagnosis.  Information on causes of various symptoms – might help your doctor figure out what is wrong with you.   
   www.wrongdiagnosis.com
4. The Center for Medical Consumers. Information to help you make informed decisions. www.medicalconsumers.org

CANCER - GENERAL

1. American Cancer Society.  A nationwide cancer organization with many support programs.  www.cancer.org
2. National Cancer Institute.  Information on cancer diagnosis, treatment, research and alternative therapies. www.cancer.gov   
3. National Comprehensive Cancer Network.  Information about treatment options and help finding cancer specialists.  www.nccn.org
4. National Coalition for Cancer Survivorship.  Offers a free Cancer Survival “toolbox” to help cancer patients meet the many challenges of their illness. www.canceradvocacy.org
5. Lance Armstrong Foundation.  Funded by Lance Armstrong, mission is to inspire and empower cancer patients.  www.laf.org
6. The Moss Reports.  Well researched reports of alternative therapies for cancer. www.cancerdecisions.com  
7. Cancer Hope Network.  Provides free one-on-one support to people with cancer, matching the patient with a volunteer who has undergone a similar experience. www.cancerhopenetwork.org
8. Gilda’s Club.  Their mission is to provide a place where people with cancer can gather to network and share emotional support as an integral part of their cancer treatment.  Has a program designed for children with cancer and those whose parents have cancer.  www.gildasclub.org
9. R.A. Bloch Cancer Foundation.  Offers volunteer support and information on coping with cancer.  www.blochcancer.org
10. Vital Options Telesupport Cancer Network.  Radio show on topics relating to cancer.  www.vitaloptions.org
11. Chemocare.  Information on chemotherapy and treatment related side effects.  www.chemocare.com
12. The Cancer Game.  Just for fun: a free cancer fighting video game.  www.cancergame.org  

CANCER – SPECIFIC DIAGNOSES

1. Breastcancer.org.  Information and support for people with breast cancer.  www.breastcancer.org
2. Y-ME National Breast Cancer Organization.  Information and support for people with breast cancer and their families.  www.y-me.org
3. Women’s Cancer Network.  Information about cancers that affect women, including a personalized risk assessment. www.wcn.org
4. National Lymphedema Network.  Provides education and guidance to people with lymphedema.  www.lymphnet.org
5. Adenoid Cystic Carcinoma Organization.  Information and support for people with adenoid cystic carcinoma. www.accoi.org   
6. American Brain Tumor Association.  Information for people with brain tumors. www.abta.org
7. Neuroblastoma Children’s Cancer Society.  Education and support for children with neuroblastoma and their families.  www.neuroblastomacancer.org
8. Oral Cancer Foundation.  Information for people with oral cancer.  www.oralcancerfoundation
9. National Kidney Cancer Association.  Information and support for people with renal (kidney) cancer.  www.kidneycancer.org
10. National Prostate Cancer Coalition.  Information and support for men facing prostate cancer.  www.fightprostatecancer.org
11. Prostate Cancer Foundation.  Information and support for men facing prostate cancer.   www.prostatecancerfoundation.org
12. National Ovarian Cancer Coalition.  Information and support for women with ovarian cancer.  www.ovarian.org
13. National Cervical Cancer Coalition.  Serving women with, and at risk for, cervical cancer and HIV disease.  www.ncccc-online.org
14. Pancreatica.  Information about pancreatic cancer.  
    www.pancreatica.org
15. Pancreatic Cancer Action Network.  Information and support for people with pancreatic cancer.  www.pancan.org
16. Colorectal Cancer Coalition.  Information and support for people with colon cancer.  www.fightcolorectalcancer.org
17. Colon Cancer Alliance.  The patient support partner of Katie Couric’s National Colorectal Research Alliance.  The website provides support and information about colon cancer.  www.ccalliance.org
18. Lung Cancer Online.  Very informative site with lung cancer information and coping support.  www.lungcanceronline.org
19. Leukemia and Lymphoma Society.  Information about leukemia and lymphoma.  www.leukemia-lymphoma.org
20. International Myeloma Foundation. Information about multiple myeloma. www.myeloma.org
21. Caring for Carcinoid.  Provides information about carcinoid.  www.caringforcarcinoid.org
22. Inflammatory Breast Cancer Research Foundation.  Information about inflammatory breast cancer.  www.ibcresearch.org
23. Liddy Shriver Sarcoma Initiative.  Information and newsletter about Sarcoma.  www.liddyshriversarcomainitiative.org
24. Facing our Risk of Cancer Empowered.  This site is dedicated to improving the lives of people affected by hereditary breast and ovarian cancer.  www.facingourrisk.org 

ILLNESS/CANCER SUPPORT ORGANIZATIONS

1. Lotsa Helping Hands.  A simple way to assist loved ones in need – an easy to use, private group calendar specifically designed for organizing helpers.  www.lotsahelpinghands.com
2.  Onco Chat. A real time global support community for people whose lives have been touched by cancer. www.oncochat.org
3.  The Wellness Community.  Helps people with cancer enhance health and well-being.  www.thewellnesscommunity.org
4. Young Survival Coalition.  Founded by women under 40 with breast cancer.  www.youngsurvival.org
5. The Well Spouse Foundation.  Offers support to wives, husbands and partners of the chronically ill or disabled.  Has monthly support groups.  www.wellspouse.org
6. Cancer and Careers.  Helpful information about coping with cancer at work.  www.cancerandcareer.org  
7. Men Against Breast Cancer.  Support organization for men with a loved one facing breast cancer.   www.menagainstbreastcancer.org
8. Mothers Supporting Daughters with Breast Cancer.  Provides support and information to mothers whose daughters have breast cancer.  www.mothersdaughters.com
9.  Pregnant With Cancer Network.  Network of women who have faced cancer during pregnancy.  www.pregnantwithcancer.org
10. Prepare to Live. A web-based young adult cancer community.  www.preparetolive.org   
11. TLC Tender Loving Care.  A service of the American Cancer Society that provides products to help women cope with appearance changes from cancer, such as hair loss and mastectomy needs.  www.tlcdirect.org
12.  Chemo Angels. Volunteer organization designed to send cheer and support to people undergoing chemotherapy.  www.chemoangels.com
13. Look Good…Feel Better.  Helps people with cancer to enhance their appearance and their self-image.  www.lookgoodfeelbetter.org
14.  Cancer Survivorship.  Support for people who are survivors of cancer. www.mdanderson.org/topics/survivorship/
15. Cancer Care. Offers counseling and guidance to help patients and families cope with cancer. www.cancercare.org
16. Fertile Hope. Helps cancer survivors address issues of fertility.  www.fertilehope.org   
17. National Family Caregivers Association.  Education, support and advocacy for family caregivers.  www.nfcacares.org

CHRONIC ILLNESSES

Diabetes

1. American Diabetes Association.  Information and support for people with diabetes.  www.diabetes.org
2. Juvenile Diabetes Research Foundation International.  Information and support for young people with diabetes. www.jdrf.org 

Heart Disease

1. American Heart Association.  Medical information about heart diseases of many types.  www.americanheart.org 

Kidney Disease

1. National Kidney Foundation.  Information about kidney diseases.
   www.kidney.org

Neurological Disease

1. National Institute of Neurological Disorders and Stroke.  Information about diagnosis and treatment of neurologic disorders.  www.ninds.nih.gov
2. ALS therapy development institute.  Information about ALS.   
   www.als.net  
3. Children’s Neurobiological Foundation.  Information about children’s neurological disease.  www.cnsfoundation.org 
4. Parkinson’s Action Network.  Information and support for people with Parkinson’s Disease.  www.parkinsonsaction.org 

Lung Disease

1. American Lung Association.  Information about lung disease and smoking cessation.  www.lungusa.org
2. Cystic Fibrosis Foundation.  Information for people with cystic fibrosis.
   www.cff.org

Liver Disease

1. American Liver Foundation.  Information about liver disease.
   www.liverfoundation.org

Women’s Health

1. Endometriosis Association.  Information about endometriosis.
   www.endo-online.org
2. Interstitial Cystitis Network.  Information about interstitial cystitis.
   www.ic-network.com

RARE DISORDERS

1. National Organization of Rare Disorders.  Information about various uncommon diseases.   www.rarediseases.org
2. Alpha 1 Foundation.  Information and support for people with alpha one antitrypsin deficiency.  www.alphaone.org
3. Children’s Tumor Foundation.  Information about neurofibromatosis.  
   www.ctf.org

1.  Bandaides and Blackboards   support for children coping with illness  www.lehman.cuny.edu/faculty/jfleitas/bandaides/
2. American Cancer Society: children and cancer. www.cancer.org/docroot/CRI/CRI_2_6x_Children_and_Cancer.asp
3. Make a Wish Foundation.  Organization dedicated to bring joy to children with life threatening illnesses
4. National Children’s Cancer Society.  Non profit financial aid organization for children with cancer. www.nationalchildrenscancersociety.org
5. Look Good Feel Better – for teens. Targeted to children 13-17 who are facing appearance related concerns due to cancer.  www.2bme.org
6. National Childhood Cancer Foundation. Information about childhood cancer and its treatment.  www.curesearch.com
7. National Dissemination Center for Children with Disabilities.  
   www.nichcy.org
8. Parents Against Cancer. Support, encouragement, and even humor for parents of kids with cancer.  www.parentsagainstcancer.com
9.  Camp Ronald McDonald for Good Times.  A camp for children with cancer.  www.campronaldmcdonald.org
10. Camp Sunshine.  A retreat for children with life threatening illnesses and their families.  www.campsunshine.org
11. Kid Said.  This site offers a safe place for kids to help each other deal with grief and loss. www.kidsaid.com
12. Group Loop.  A safe place for teens with cancer to get support, encouragement and hope.  www.grouploop.org
13. I’m Too Young For This.  Social network and support site for young adults dealing with cancer.  www.imtooyoungforthis.org
14. Make a Child Smile.  Features children with cancer and allows others to send them cards and support.  www.makeachildsmile.org
15. Candlelighters Childhood Cancer Foundation. Educates and supports families of children with cancer.  Has a special section just for kids.
     www.candlelighters.org             
16. Kids Konnected.  Groups and programs for children whose parent has cancer.  www.KidsKonnected.org
17. The Painted Turtle.  An innovative camp and year round care center for children with life threatening illnesses OTHER THAN cancer (asthma, diabetes, kidney transplant, spina bifida and others).  Founded by Paul Newman, camp is provided free of charge.  www.thepaintedturtle.org

ALTERNATIVE MEDICINE

1. www.altmd.com
2. National Center for Complementary and Alternative Medicine (NIH).  Research based information on alternative medicine. www.nccam.nih.gov
3. Alternative Medicine Foundation.  Education about the integration of alternative and conventional medicine.  www.amfoundation.org
4. Holistic Healing Web Page.  Information on the philosophy of holistic healing as well as specific holistic topics.  www.holisticmed.com
5. The World Wide Meditation Center.  Instruction and guidance for people who are new to meditation.  www.meditationcenter.com

GENETIC TESTING

1. Gene Tests. Lists many tests for genetic disorders and provides information on testing sites.  www.genetests.org  

AGING

1. Children of Aging Parents.  Offers information, referrals and support for caregivers of elderly parents.  www.caps4caregivers.org  
2. NIH Senior Health.  Website offering information about health issues affecting older adults.  www.nihseniorhealth.gov
3. Capabilities.  This company offers products designed to assist the elderly and those with disabilities.  www.capabilities.com

TRAVEL & LODGING ASSISTANCE

1. National Patient Travel Center. Organization that facilitates patient access to charitable air transportation.  www.patienttravel.org
2. Life Line Pilots. Transportation assistance for families needing to travel for medical appointments or treatments.  www.lifelinepilots.org
3. Angel Flight Samaritan.  Helps cancer patients in need of travel for medical reasons.  www.angelflightsamaritan.org
4. Corporate Angel Network.  Cancer patients fly free to medical appointments using open seats on corporate jets.  www.corpangelnetwork.org       
5. National Association of Hospital Hospitality Houses, Inc.  Provides information about housing options for people traveling to distant medical centers for care. www.nahhh.org

INSURANCE/DISABILITY ISSUES

1.  Patient Advocate Foundation.  Provides support for issues of insurance and healthcare access.  www.patientadvocate.org
2. Gerald Kagan, patient advocate (disability issues).  A retired attorney who advocates for patients to receive disability benefits.   This e-mail address is being protected from spambots. You need JavaScript enabled to view it

GRIEF

1. Grief Net. An internet community for people dealing with grief, death and major loss.  www.griefnet.org